Hope For Henry Foundation

Ok, I was floating through some blogs and came across this old blog and couldn't quit reading it. It was written by a woman that had given birth to a beautiful little boy named Henry only find out he had a birth defect and then to make matters worse they discovered that the defect was due to him having Fanconi anemia. He had a weak heart and needed surgery, but even if he received the surgeries and they went well he would have to have a bone marrow transplant if there was going to be any chance for him to live. And the transplant needed to be from a sibling, because unrelated donors didn't work. So this blog chronicled the steps these parents took to try and save their son. Through a specialist they sought to have a child through IVF and determine before conception whether or not this child would genetically match Henry and whether or not it would also have the disease. It didn't work, they did however end up having to more sons, Jack and Joe. And Henry passed away in 2002. They created this foundation "Hope for Henry" in hopes of helping other children and families with this horrible disease. I wanted to post the link to this blog, but accidentally lost it so I am posting the link to the Foundation's website, it's an incredible story. http://www.hopeforhenry.org/index.html